Thursday, November 13, 2008

Sydney is doing well. I am having fun watching her little personality develope. She sticks both legs up in the air when she wants the nurses attention. It is so cute! She is pretty mellow most of the time, on occasion someone will make her made but she usually recovers nicely.
We have a surgery date and time. Syd is going to have surgery tomorrow (11/14) at around 1:30pm. Everyone seems very confident that she will be fine. Our favorite Ecmo man is on so that is one relief.
Please say an extra prayer for ourgirl tonight. Thank you.
Yesterday was another good day for Sydney. Dr. Flake came by this morning and is very pleased with her progress. He has increased her Lasiks and wants to do surgery tomorrow afternoon (fri.) if she does not gain anymore fluid. We went over the procedure and the biggest complication is the bleeding. She has been on ecmo, she needs to be on blood thinners so the ecmo does not clot. My anxiety has increased just a tad!
Please keep Sydney in your prayers. Thank You

Sydney's Big Day

Sydney had another great day yesterday and an uneventful night last night. Dr. Flake came by this morning and is very pleased with her. He wants her Lasiks increased today and if everything goes well she will have her repair tomorrow (fri) afternoon. He went over the surgery with me and call the complications that could occur. The biggest being the bleeding, because she will be on ecmo during the procedure and has been on blood thinners so the ecmo does not clot. My anxiety has increased just a tad.
Please keep Sydney in your prayers . Thank You

Tuesday, November 11, 2008

Today I went back to Philly to saty for a few days. Emily, Alex, and Michael were all very upset. We all sat in moms livingroom crying. I did not want to leave but know that Sydney needs me there. Actually the kids told me last night not to be upset, they know Sydney needs me more right now then they do. They are great kids.
Sydney is doing well. They had to change a part on the ecmo machine today so she was off of it for about a minute and did fine. They said it was a good test. Dr Flake came by today and said that fri looks like surgery day as long as she continues to loose her fluid. If she has surgery on Fri they are looking at taking her off the Ecmo by the end of next week. This scares the crap out of me. She is very content were she is. i know she needs surgery and off ecmo, but that is the safty net!
I am so sorry that I have not gotten pictures up yet. If you go to www.carepages.com and put in sydneytaborelli you will be able to see her. I don't know when I will get to our computer and I don't think I can download pictures on the computers at CHOP.
Thank you for all of the prayers. PLease continue because God is truley listening.

Saturday, November 8, 2008

HAPPY BIRTHDAY SYDNEY!

Sydney is here!. She arrived on wed. Nov 5th at 9:35 am. via c-section. She was pink and tried to cry. She was holding her own but around 3:00 decided to put her on ecmo. She has been doing well ever since. She is beautiful. She looks a lot like Emily, same color hair. A lot of hair and looks like it might be on the curly side. She has the cutest nose that she squooshes up when she is irratated. She does not like the lights in the nicu or when other babies cry! And she hates haveing her diaper changed.
She is doing so much better than they thought she would. The hernia is on the right side and a portion of the liver is up in the chest. She does have a left lung that is a good size. Her intestines and stomache are also in the chest. We are hopeing that surgery can happen in the next two weeks. No rush, she is just chillin. So far all of the nurses are very nice and informative. We do have pictures I just have to wait to get home to upload them. I hope to do that Sunday or Monday.Thank You all for your prayers and support. We definatley have something to be greatful for!