Tuesday, September 30, 2008

Today we went to the Docs at Hunterdon Medical for an ultrasound and NST. Sydney weighs approx. 4 pounds. And she was taking practice breathes. This is all good. My amnio fluid is still a little high but not too high. And Syd has decided to hang out at the very top of my uterus. She is very much breeched, so I guess we are looking at a c-section. My next appointment is on fri at Hunterdon.
Thank you for all of your prayers and support.

Friday, September 26, 2008

Today we had our first non stress test. As soon as the nurse put the monitors on me Sydney was off the wall. She was kicking and moving that the nurse just stood by me for the 15 min. Everything looks great, her heart beat was between 145-155 and no contractions yea!!
Starting tuesday I will be going to our regular ob twice a week for ultrasound and non stress test. Oct. 24 our care will be transfered to CHOP. I will be 34 weeks. I hope at that time they will be able to tell when they will do c-section or induction.
Thank you all for all of the prayers and support.

Tuesday, September 23, 2008

Today we had a routine ultra sound at CHOP. Mom went with me so she would be able to get there after the baby is born. Well we got so lost. Thank God for GPS! Anyway the tech started labeling the organs. Stomache is still up, liver is still up, Bowels still up, heart is still pushed over to far left. Then I saw a gray mass above the heart. " Is that a lung?" I asked. The tech said yes! Sydney has a portion of a left lung. We have never seen lung tissue before on any ultrasounds! It is not a little piece either. I don't know if it a whole lung but it is a good size! She also weights 31/4 pounds which is right where she should be at 30 weeks. Her heart looks strong and she is swallowing amnio fluid and producing urine. This is all good.
I will also beable to continue to see my Docs at hunterdon for another 4 weeks. Oct 24th ( @ 34 weeks) I will need to start to go to CHOP weekly. They also think I will need a c-section due to the fibriod that is near my cervix. I am not too crazy about that, but at least we can plan a little bit. Thank you all for your prayers and support. They are working!!

Tuesday, September 16, 2008

Sweet Kaden Grew Wings.

Tonight I am heart broken. We found out that another baby with CDH has passed away. The brave little warrior was Kaden Morrow. He was born Aug. 18th. He fought so hard.I really believed he was going to make it. He made it through surgery and many different hurdles. I needed him to make it. As long as he was alive, I truley believed that Sydney was going to come home. If this baby could beat the odds then maybe Sydney could also. I know that this is so selfish of me, but I needed something to hold on to. I can't even imagine what his family is going through. I pray that God gives them peace and that Kaden gives them a sign that he is ok.

Right before I saw that Kaden had passed, Emily found the latest ultrasound picture of Sydney. It was taken last week . When the tech handed it to me I had no idea what it was. I showed it to Gary and he could not tell either. Tonight Emily looked at it and she saw right away that it was the baby's face. You can see her nose and lips, her eyes and ears. It really is the best picture of her face yet. I know it is going to sound crazy, but I believe that it is a sign from God and Sydney that she will be ok.
Please continue to pray for her.

Thursday, September 11, 2008

Today I had another ultrasound and visit with the DRs. For the first time I did not cry while looking at the pictures. Her heart was beating at 160 per min. which is a very good sign.My fluids went from 17 last thursday to 22 today. And my biggest fibriod which is down by my cervix is 7cm. I think we may be looking at a c-section. Not too happy about that but one good thing is I'll beable to spend that much more time in the hospital. Please keep Sydney in your prayers.

Tuesday, September 9, 2008

On July 15, 2008 we found out that we were having a baby girl. Gary and I were so excited, but that excitement soon turn to concern and then quickly to fear. The doctors told us that the baby had a severe birthdefect called Congenital Diaphragmatic Hernia (CDH). The baby's diaphram did not develope properly and her stomache, liver and most of her intestines are in her chest cavity. This prevents the lungs from developing. We were referred to Childrens Hospital Of Philadelphia (CHOP). At CHOP we foung out just how serious this defect is. Our baby girl was given a 10% chance of survival.

She will have to be born at CHOP and then placed on life support. Most likely she will be put on a machine called ECMO. This removes the blood from her body and is oxygenated then returned, giving the lungs time to rest. She will then have surgery to remove the organs out of her chest and put where they belong and a patch will be made out of Gortex to act as the diaphram. She has a very big fight ahead of her.

When we came home from CHOP we decided to name her Sydney Ann Taborelli.