Thursday, November 13, 2008
We have a surgery date and time. Syd is going to have surgery tomorrow (11/14) at around 1:30pm. Everyone seems very confident that she will be fine. Our favorite Ecmo man is on so that is one relief.
Please say an extra prayer for ourgirl tonight. Thank you.
Please keep Sydney in your prayers. Thank You
Please keep Sydney in your prayers . Thank You
Tuesday, November 11, 2008
Sydney is doing well. They had to change a part on the ecmo machine today so she was off of it for about a minute and did fine. They said it was a good test. Dr Flake came by today and said that fri looks like surgery day as long as she continues to loose her fluid. If she has surgery on Fri they are looking at taking her off the Ecmo by the end of next week. This scares the crap out of me. She is very content were she is. i know she needs surgery and off ecmo, but that is the safty net!
I am so sorry that I have not gotten pictures up yet. If you go to www.carepages.com and put in sydneytaborelli you will be able to see her. I don't know when I will get to our computer and I don't think I can download pictures on the computers at CHOP.
Thank you for all of the prayers. PLease continue because God is truley listening.
Saturday, November 8, 2008
She is doing so much better than they thought she would. The hernia is on the right side and a portion of the liver is up in the chest. She does have a left lung that is a good size. Her intestines and stomache are also in the chest. We are hopeing that surgery can happen in the next two weeks. No rush, she is just chillin. So far all of the nurses are very nice and informative. We do have pictures I just have to wait to get home to upload them. I hope to do that Sunday or Monday.Thank You all for your prayers and support. We definatley have something to be greatful for!
Wednesday, October 22, 2008
The appointment went well. Sydney cooperated for them so they did need to chase her with the heart monitor like usual ( she has quite the reputation in the office). Her Bio-physical looks great and mommies blood pressure went down. So all went well. We go to CHOP on fri. I hope they will beable to give us a date. I am hopeing for the week of Nov. 10 ( 37 weeks.). Lets keep our fingers crossed. I will keep you posted.
Friday, October 17, 2008
Syd is head down and is doing really well. We have one more visit on tues. in Jersey then we are off to Philly. We only have about a month left. Now the anxiety is starting. I am so ready to have my body back, I am not ready to deal with the what happens after part.
Thank you for all the prayers and support.
Wednesday, October 15, 2008
Thank you for all the prayers and support. I will keep you posted
Friday, October 10, 2008
Thank you all again for all the prayers and support.
Wednesday, October 8, 2008
We have another appointment on fri so we will keep you posted.Thank you for all the sup[port and prayers.
Friday, October 3, 2008
The DR. said that this baby has amazed all the Docs in the office because of the lack of lung tissue and the amount of bowels they thought she would have been still born weeks ago. She is so strong and growing at the perfect rate. Six weeks ago CHOP told us she had a bilateral hernia and that it is very uncommon for babies to survive. Now she has lung tissue, a good amount at that and a diaphram. I can not wait to go back to chop to see what they say.
We have another visit on Tues. I will keep you posted.Thank you for all your prayers and support.
Tuesday, September 30, 2008
Thank you for all of your prayers and support.
Friday, September 26, 2008
Starting tuesday I will be going to our regular ob twice a week for ultrasound and non stress test. Oct. 24 our care will be transfered to CHOP. I will be 34 weeks. I hope at that time they will be able to tell when they will do c-section or induction.
Thank you all for all of the prayers and support.
Tuesday, September 23, 2008
I will also beable to continue to see my Docs at hunterdon for another 4 weeks. Oct 24th ( @ 34 weeks) I will need to start to go to CHOP weekly. They also think I will need a c-section due to the fibriod that is near my cervix. I am not too crazy about that, but at least we can plan a little bit. Thank you all for your prayers and support. They are working!!
Tuesday, September 16, 2008
Right before I saw that Kaden had passed, Emily found the latest ultrasound picture of Sydney. It was taken last week . When the tech handed it to me I had no idea what it was. I showed it to Gary and he could not tell either. Tonight Emily looked at it and she saw right away that it was the baby's face. You can see her nose and lips, her eyes and ears. It really is the best picture of her face yet. I know it is going to sound crazy, but I believe that it is a sign from God and Sydney that she will be ok.
Please continue to pray for her.
Thursday, September 11, 2008
Tuesday, September 9, 2008
On July 15, 2008 we found out that we were having a baby girl. Gary and I were so excited, but that excitement soon turn to concern and then quickly to fear. The doctors told us that the baby had a severe birthdefect called Congenital Diaphragmatic Hernia (CDH). The baby's diaphram did not develope properly and her stomache, liver and most of her intestines are in her chest cavity. This prevents the lungs from developing. We were referred to Childrens Hospital Of Philadelphia (CHOP). At CHOP we foung out just how serious this defect is. Our baby girl was given a 10% chance of survival.
She will have to be born at CHOP and then placed on life support. Most likely she will be put on a machine called ECMO. This removes the blood from her body and is oxygenated then returned, giving the lungs time to rest. She will then have surgery to remove the organs out of her chest and put where they belong and a patch will be made out of Gortex to act as the diaphram. She has a very big fight ahead of her.
When we came home from CHOP we decided to name her Sydney Ann Taborelli.